My daughter, with her rediagnosed autism is 1 in 68 in the doctor's eyes, but she's 1 in 1 in mine. Keep reading, keep researching, keep fighting. Most clinics are assembly line.checkup, diagnose, next. #One hand clapping initial release date trialWe're living this 24/7, researching, reading, running trial and errors. Beleive me, sometimes i think parents know more than the "experts". You hit the nail on the head when you said your reading has made you more knowledgeable than most. If there's a language communication issue, then you have the 3 required impairments for autism. Sounfs like your daughter has sensory issues, along with social. And this is coming from reputable doctors and clinics in my state. I've been on this board for 2yrs, and while my daughter is only 5,she has diagnosed, undiagnosed,and rediagnosed with autism, social pragmatic disorder, adhd-i, quirkiness, speech delay due to bilingual upbringing, and the list goes on. Finding the small and precise things you can treat is a big help to minimize the larger aggragate of issues, which are mysterious and hard to figure out from that perspective. (Also, to be authoritatively prepared for excellent ADA requests.) This is beyond "diagnosis" and is personal or family knowledge of exactly what issues can be specifically addressed (such as certain forms of certain vitamins) to avoid bigger complexes of expressions of those issues when they look like behaviors and motivations, rather than a missing ingrediant (or 30) which changes everything. That said, I myself am also very keen on finding out specific genetic variants (via 23andme then analysis elsewhere, or by other means) so that when a particular enzyme or such isn't being produced, which affects this and that biochemical need, one can correct the issues nutritionally, or be forewarned and avoid the toxics that will be particularly harmful. This is a tip-of-the iceberg sort of answer, but I do truly feel that freedom for this kind of physical expression (also others joining in for learning, resonating with or learning from) is GOOD for finding one's internal dashboard of complex self-regulation. #One hand clapping initial release date fullA big dance in circles, could become a little wiggle dance of the head plus smile later on, if allowed full and happy expression now. If "flapping," or jumping up and down, expresses what is inside in a way that works for us, there needs to be more flapping and jumping up and down in the world generally! And having freedom of expression, and others appreciate how we express ourselves, will allow one to also grow other expressions, including more internal ones out of the current ones. I think these kinds of behaviors should be looked on as exactly that: having at hand, and being connected to the physical expressions that are right for us given what processes are going on inside. #One hand clapping initial release date how toIt is such a problem for us developmentally to not get to find and "know the territory" of how to be happy and flexible in our moment to moment experience. Oh- now I see the age of this post by all the follow-ups - I'll continue the thought for any who are interested. (Adrenaline resets our body for faster/stronger mode, so to speak, so using it that way helps to resolve the state.) Like if you are stressed, fast physical activity hastens resolving that generally. He encourages understanding "flapping" and similar behavior as being a self-directed means of helping one's regulatory state. You might look at Stephen Porges MD's interviews, where he discusses this issue in context of autistic children. Regulating one's own state with behaviors It takes one to two years to see a specialist where I live and in the meantime I’m left with many questions. I’m not sure if this is a sensory issue, but I’m kind of thinking so. She is good with things like imaginative play as well. Communication and language skills are good. I find that she can make friends with kids anywhere she goes and she does have three friends she is very close to. She is intelligent and has met all of her milestones. I don’t experience any behavioural issues with her. She covers her ears but doesn’t freak out or anything. She has mild sensitivity to sounds like flushing toilets and hand dryers in public washrooms. She will spin around for the longest time on the spinner at the park and loves going really high on the swings and will go on pretty much any thrill ride. She also jumps around while flapping her hands when she is excited. My daughter has been flapping her hands for a long time.
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